Monday, October 19, 2009

Lilianes Condition.


So 3 to almost 4 weeks ago Liliane and the whole family got the flu. Except her diarrhea never went away. I had been taking her to a Dr. every week telling them that she still has diarrhea and they said it was normal, or it was because she was getting all four top teeth at once! Ok I know how hard it is for them to get teeth, but diarrhea doesn't last for more then a couple days I mean I'm not stupid I took care of my little cousins and what not. I just don't like the Bull con answers that they are giving me. But I keep trying to fix her myself.. like before, with just straight pedialyte or just banana juice or rice in everything.. it's not working. What liquid goes in comes straight out her bum; within seconds too! It's just really disheartening. So finally I took her to the InstaCare and he ordered a bunch of tests, and he's just like you need a stool sample whenever you can get one just hang out for a few days.. well unfortunately we couldn't wait a few days. Yesterday after her breakfast of bananas bread and a little bit of baby food she did the grunting and you could here that she had just went poop. Well When I changed her diaper it was full of blood! Just straight blood. I didn't know how to react to this.. and of course lily is screaming bloody murder not helping the situation at all! So of course I started crying, not knowing what else to do.. I put the diaper in a bag and we get ready and go to the ER.. let me tell you if you really have an emergency never go to UVRMC we waited 2 and a half hours and we weren't getting seen. Well I picked up told them to shove it and we went to Orem community! Of course no one was there and we got seen right away.
The thing that upsets me the most is that the Drs approach to me is very rude like, " we can't figure out what's wrong with her since you couldn't get that stool sample." That is not what I want to hear. I want to hear that you are going to help me get that sample and that you are going to figure out what we are doing to help this BABY, cause after all that is what she is a baby! So finally they do some blood work and I was about to die!! They put in a butterfly needle in her arm.. to us that's like nothing, but to babies that's like a 12 gage needle when you're giving birth! HUGE! So they blood work comes out ok. Now we get sent home she finally goes in the bag that they placed, and then we go to the hospital again to drop it off! Now we wait. The Dr said she might have to go to a Pediatric Endocrinologist which is the digestive system Dr, and they will do a Pediatric colonoscopy. Whatever needs to be done to find out why she is having malabsorbtion. As a parent you think of your child as perfect. So when she is so brittle like this and you can't help her it tears you down, and I am super depressed for her and for myself because I feel like I am failing my daughter. I stay up with her at night when she is screaming because you can just hear her stomach hurting and it hurts me more then it does her, because I want more then anything to just take on her pain.
That is something Drs. wont understand. To me, I'm desperate for answers.. to them, I'm just an overprotective parent. So everyone please keep lily in your prayers because she's getting worse everyday.

2 comments:

Mikelle said...

Oh my goodness!! Im sooo sorry to hear about her!! I would be doing that same thing. I hate when drs act like that! The think we are stupid or somthing!! I will forsure keep her in my prayers!! Let me know if i can do ANYTHING!!! Call me 8019210046

Mikelle said...

Maybe you get her tested for celiac disease!!! What that is they are It sounds alot like that.